In the media

• Guardian article: “Making NHS data public is not the same as making it accessible – we can and should do better.” by Christina Pagel, UCL and David Spiegelhalter, University of Cambridge.

Other coverage

• Sense about Science discuss their new public engagement guide based on this website work in this NIHR Blog.
• Christina Pagel discusses the five steps of public engagement and how they applied to this website in this NIHR blog.
• The BMJ/News: “Children’s heart surgery website aims to end confusion over survival rates”
• The Lancet/Editorial: “Communicating risk about children’s heart surgery well”
• Sense about Science wrote about why involving the patients and families, and involving them early, matters, on the Association of Medical Research Charities’s blog.
• Christina shared her insights from the experience and provides tips for other researchers in a National Institute for Health Research (NIHR) blog.
• The Royal Statistical Society blogged about the project.
• Tim Rakow, KCL shared his experience in a KCL news piece.
• University of Cambridge “Parent-led tool opens up NHS children's heart surgery data to families”
• Children’s Heart Federation explain: “ …parents’ views have been at the heart of developments that today launch a parent-led tool opening up NHS children’s heart surgery data to families.”
• Royal College of Surgeons of Edinburgh: “Understanding Children’s Heart Surgery Outcomes”
• Insight: Medical Research Council “Beyond open: making your data accessible”
• Mumsnet guest post: “I hope we've helped others preparing for their child's heart surgery” by Alex Smith
• Understanding Uncertainty: “Exploring the language of chance in a sensitive context” by David Spiegelhalter
• Communicating Risks Reactively: A video of Mike Pearson's talk about the development of this site which was presented at Euroclojure 2016.
• Telegraph article: “Doctor's Diary: There's another side to the closure of children's heart surgery wards” by Michael Fitzpatrick